The Cost of a Life

alfie evans

It does not matter, to me, the complexity of someone’s illness, or ailment. It does not matter to me, how long it might take for someone to get well. It does not matter to me, if it might take a lot of adaptions, if someone is disabled. If it is a relative or son or daughter of mine, they have the life God gave to them, and I would love them no matter what happened. Our NHS has been under attack for so long, that now it is coming to this, who lives, and who dies. It is appalling that a specialist children’s hospital should end up, with a choice of ending care, in the way that the little toddler Alfie Evans long term care came to an abrupt final week, at Alder Hey, in Liverpool, England. Expected to die after the life support system was removed, and yet he breathed, and even opened his eyes. And he did so the whole of five days from the Monday to the Friday, apparently only succumbing to death due to no fluids or food being administered to him. He would have I am sure lived a little longer with the right amount of nutrition and food. It is impossible, to see why the hospital behaved as it did once the babe had actually survived the removal of the ventilator. Additionally the doctors would not release the baby to the care of a Vatican Hospital, where the entire family would have benefited from the prayer of a Christian community. Whether Alfie was destined to live, is not down to the bureaucrats who organize funding. The offer from the Vatican was for ‘free’, including transportation. So there is no excuse for the hospital staff to not have a heart. It would not have cost Alder Hey a penny to allow the parents to take up the offer from Pope Francis himself. I find myself angry, but, yet I am not the one hurt, or punished. I am not the baby allowed to starve. I am not the parent who had to watch, and hope someone would come with a passport out of the hospital. They had arranged it that Saturday would be the home going day, but the parents had thought it would be with a live baby. So what went wrong? And was that the gruesome (sea change) that doctors expected both Kate and Thomas to accept, that a baby could only go home once he had passed?  There is something dreadfully wrong with this story. There is something dreadfully wrong with the law. I do think that parents faced with these dreadful decisions, have to have a lot of empathy from hospital staff, and more, the possibilities, need to be broader and freer. I spent my entire week thinking and worrying  about Alfie, and the fact he might not be being fed, or nurtured as a toddler would need energy to do all that breathing, even if he was unable to walk, breathing does take some energy. I hope, Alder Hey, change their policies. Not another child or parent should suffer. Parents and particularly mothers are given so much attention when pregnant. Pregnant mothers attend ante natal classes and literature is passed to the family for free. All so babies can live. I would hate to see the problem that occurred in Germany of selection of only healthy babies, being introduced to society. The problem with not enough ‘reaction’ to this death, will be, that it will happen again, the same doctor will assume it was alright. I could not believe his appearance on Morning Television, amidst the whole sufferance of the parents, the same week. May the whole of Liverpool get behind Kate James and her partner Thomas Evans with how they proceed from here.

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